For anyone who doesn’t know me or know what my ‘journey’ is about-here’s an introduction…..
…For most of my adult life I have been aware of the possibility that I may need a heart and lung transplant at sometime in the future. Well, that future is now TODAY.
Despite this knowledge I have always tried to put it to the back of my mind and carry on as normal…to the point that even I have to admit I have been ‘in denial’.
As apart of my ‘acceptance and healing process’ we came upon the idea of keeping a blog. This would also help to keep in touch with my friends and loved ones during and after the operation when visiting is very limited. Whilst I am still under the influence of anaesthesia and sedation, Evan will maintain my blog.
I may add my medical timeline in order to catalogue the journey so far, providing a history. (just a list if my battle scars really!!!!!!!!)
I aim to be realistic in my diary but hopefully not too morose. We are as a family ( and that includes my friends ) continuing to be very positive about the operation itself and of course, the chance of a new life afterwards, rediscovering the old, real me.
I may, at times, get a little sentimental, wanting to tell you all just how much I love you and how much you mean to David, Evan and myself. PLEASE bear with me. Despite the situation I do actually feel extremely lucky to have the chance to say these things to you.
Please feel that you can join in with my blog especially after the operation, when it would be wonderful to hear from you. More so, when the physios get me pumping iron and gearing up to run marathons the week after my op (OUCH!!!!!!) when you can all cheer me on!!!!
I found that during my journey so far there has been very little information or support out there for someone approaching this point…..the positive thoughts of health professionals can only go so far when the mechanics finally give in!!!!! I hope that my blog may help somebody else in the future.
I obviously must implore everyone to consider their views and feelings about organ donation and if anyone feels that they would like more information or agree to donate all possible/some organs after their death….I have included the link for the organ donation website.
PLEASE REMEMBER: YOU must opt in and sign up and don’t forget to share your feelings with your loved ones, if they don’t know your wishes they cannot carry them out for you!